A Devastated Couple Opened Up About Their Little Girl Dying Before She Knew She’d Be A Big Sister

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Image: Instagram/chandrasooter

Unfortunately, life had other plans for the Sooter family. About when they had imagined they’d be trying for baby number three, Matt and Chandra began to notice problems. Addy had trouble with walking and with her coordination, tendencies that intensified over the course of a month.

Image: Facebook/Matt Sooter

Matt told People, “We were confused, but we thought it could be because of the growth spurt she had just gone through. As it got worse, we became more and more concerned.” But their worry could not have prepared them for the diagnosis that doctors eventually handed down to Addy, then 2, in November of 2016.

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Image: Facebook/Matt Sooter

Addy had diffuse intrinsic pontine glioma (DIPG), a rare and aggressive cancerous tumor growing on her brain stem. The diagnosis came with a less-than-one-percent survival rate. Understandably, “life, and all other plans, immediately went on pause” for the Sooters, Matt told Love What Matters.

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