Following their birth, Sonny and Gio spent the next few weeks in the hospital’s neonatal intensive care unit, before finally going home. Within ten days, though, the twins were then transported to the Children’s Hospital of Philadelphia, following a devastating diagnosis. Unfortunately, the boys were suffering from a condition known as chronic granulomatous disease (CGD).
CGD is a rare disorder which causes your body’s immune system to stop working. As a result of that, you become vulnerable to any kind of infection or virus. “It’s like the bubble-boy syndrome,” Robin told The Philadelphia Inquirer. “If we don’t do a transplant, they can get very sick from a small infection. A cut can be fatal.”
Mom Robin is unfortunately better-versed than most on the subject of CGD. Indeed, her oldest son Dominick was also diagnosed with the condition as a baby. He subsequently spent close to a year at the Children’s Hospital of Philadelphia, with doctors monitoring his condition. On the eve of his first birthday, though, the youngster was handed a lifeline.